autoimmune diseases - Forum

autoimmune diseases

Private
Living Legend

glowed wrote:

bexxi wrote:

glowed wrote:

bexxi wrote:
if i had chronic pain id be in such a bad mood everyday
the instances in my life where i had constant pain i was just really annoyed at life constantly

so its really admirable to me when ppl with chronic pain dont let it affect their mood too much id be such a bitch

it’s genuinely so hard 🥲🥲 I wake up in pain every day and have to lie in bed for 30 mins to an hour until I feel capable of getting up,, so if I have to wake up early, I need to wake up Even Earlier before I can be a functioning human being

it’s tough as balls but what can you do other than live on yk !!

i really feel for u (and everyone else in this sitution) i hope u manage to cope with it as best as u can even tho the baseline will always suck

❤️❤️❤️

Private
Living Legend

glowed wrote:

Aske wrote:

glowed wrote:

Aske wrote:
i dont know, i wasnt able to see a doctor when i was sick and apparently i can't get it confirmed without making myself sick on purpose for a prolonged amount of time so i guess ill just never know

oh wow ???
my autoimmune disease is characterized by flare ups and I was hospitalized a while ago with the purpose of determining what’s up, but I didn’t have a flare up during that time so all my tests came back fine 😭 that, however, helped them determine that it’s recurring flare ups and not something like rheumatoid arthritis that is always present and that deteriorates your body over time. but I was so so scared they’d send me home without a diagnosis because on paper everything seemed fine yet I was in pain all the time.

I hope you’re not in too much pain and that they manage to figure out what’s up ): in the meantime you can try and figure out what causes your flare ups/sickness and do your best to avoid high stress situations, though that’s hard in this present day

oh man that sounds so tough, im glad you got an answer, but id imagine its a very heavy answer to get. i wish i had anything useful to say, other than that i hope you find ways to manage it as best you can. and its ok to not be ok, sometimes life really just sucks

whether its autoimmune (celiac) or not honestly doesnt make a big difference to me, it would have been good to know, but it doesnt change how i have to go about it, im very much gluten intolerant either way. it has complicated my life in ways i wouldnt have foreseen, but i feel truly fortunate that its something that can be kept in check as long as i dont trigger it.
i get microdosed all the time tho, because our kitchen is a contaminated hellscape, and every surface area is covered with flour at all times. but i can handle it, its not too much. and i remember how bad it can get, i genuinely thought i was a dead (wo)man, so the fraction of it that im dealing with now doesnt feel as severe

at least i hope that the microdosing is whats causing my current issues lol, it would be so uncool if its something else, and im just ignoring it because i thnk i have it all figured out and the doctor told me to have some fish oil and get a job

I had no idea celiac was classified as autoimmune omg but that does make sense!
that sounds so tough oh wow )): are the people you share the kitchen with aware of your gluten intolerance?? is there any way to get them to be more considerate?
that doctor sounds like an ass ….

Elisia
National Star

elisia wrote:
I cope by taking days/weeks away from people. I call it hermit-ing
When I am a hermit I set the house temperature very cold am covered in a blanket at all times, compression gear on and walk with a cane. I have to watch what I eat too, which makes me very sad.

To actually help:
Compression gear, hot bath, Epsom salt foot soak/massage, and remembering that I am not 16 and my body is deteriorating at a faster pace than the average/normal person my age so looking or behaving normal was never in the cards for me anyway! /pos
I love being different but boy howdy sometimes it sucks

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