why getting a diagnosis should be harder - Forum

Bloodflowers
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Bloodflowers wrote:
slightly controversial

I wish I could remove my bpd diagnosis because
1. I never got treatment
2. It was based on my late teens
3. It never gets brought up it's just there
4. I filled the minimum of criteria needed

And I don't fit the criteria anymore, I never got treatment and I've gotten told I don't need it, yet it's supposed to stay on my papers?

If you don't think there is a real problem with overdiagnosing, especially teenagers i just don't agree.
Or in children, I have 2 siblings who my mom is pushing to get diagnosed with autism and one of them got the lowest level of autism and idk if the other one is seeing a doctor yet but also the fact that SO MUCH is about how the world views this person.

I remember when I lived alone and never met anyone and they were like ok but I want to talk to ur parent im like hello im 19 and see them like once a year.

I hate asking for like doctors notes or whatever its called and them writing lots of stuff i dont even fit the criteria for but maybe did once

And recieving a diagnosis isnt even like an in dept look at ur symptoms for weeks i literally have "anxiety disorder" as a diagnosis but they don't specify which its ONLY there because i took medication for anxiety 4 years ago.

Bloodflowers
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Bloodflowers wrote:
what im saying is it shouldnt be this easy to recieve a diagnosis because its so hard to get removed

and i know sometimes its hard to get a diagnosis U WANT but i mean when its something the DOCTORS WANT they dont need much proof they just decided this is what u have

Bloodflowers
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Bloodflowers wrote:
i also find it extremely weird the patient has so little say on what diagnosis is in their papers? if i've never recieved treatment and never will then just.... why...

Kit
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Kit wrote:
yeahh i'm ? kinda with u ?
like i'm v hesitant to say anything mental health related should be 'harder' bc a lot of people face huge obstacles to diagnosis and treatment but

ya i've in therapy since i was 15 and have been diagnosed with PMDD, GAD, depression, social anxiety, bpd and avoidant pd by a bunch of different therapists mostly in my teens --- i know that some are probably accurate but most of these are just best guesses lmao. my sister was also misdiagnosed w bipolar disorder in her teens too, & she had some pretty intense side effects from medication from that too

so yea, i think especially with stuff like personality disorders u ... cannot be diagnosing teenagers

Kit
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Kit wrote:

Bloodflowers wrote:
i also find it extremely weird the patient has so little say on what diagnosis is in their papers? if i've never recieved treatment and never will then just.... why...

but also that's really weird honestly ? is there not a way to have that removed ? i know where i'm currently being treated ur therapist has to confirm with u any diagnosis they make and also has to get consent to make that information available to like ur general practitioner or insurers etc.

like w patient privacy is there not a way to have that diagnosis like idk . redacted or whatever ?

Bloodflowers
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Bloodflowers wrote:

Kit wrote:
yeahh i'm ? kinda with u ?
like i'm v hesitant to say anything mental health related should be 'harder' bc a lot of people face huge obstacles to diagnosis and treatment but

ya i've in therapy since i was 15 and have been diagnosed with PMDD, GAD, depression, social anxiety, bpd and avoidant pd by a bunch of different therapists mostly in my teens --- i know that some are probably accurate but most of these are just best guesses lmao. my sister was also misdiagnosed w bipolar disorder in her teens too, & she had some pretty intense side effects from medication from that too

so yea, i think especially with stuff like personality disorders u ... cannot be diagnosing teenagers

i think a diagnosis should b harder like they should look very deep into the person and the issue but i definitely think treatment should be easier to get ESPECIALLY different types of therapy and you shouldn't be required to have a diagnosis as i think i was told u had to when it came to DBT? like i've never gotten any type of therapy only meds which i think isn't okay

Bloodflowers
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Bloodflowers wrote:

Kit wrote:

Bloodflowers wrote:
i also find it extremely weird the patient has so little say on what diagnosis is in their papers? if i've never recieved treatment and never will then just.... why...

but also that's really weird honestly ? is there not a way to have that removed ? i know where i'm currently being treated ur therapist has to confirm with u any diagnosis they make and also has to get consent to make that information available to like ur general practitioner or insurers etc.

like w patient privacy is there not a way to have that diagnosis like idk . redacted or whatever ?

The only way to get it removed is to do a second opinion as in do a new entire diagnosis thing with a psychiatrist but that's hard to get. I've brought up this shit for years but they just kind of shrug and ignore it. It needs to be from someone who didn't put the diagnosis on me and getting an appointment in general is like u have to wait months

Private
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ouch wrote:
I agree but also can't relate from personal experience ouff

Kit
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Kit wrote:

Bloodflowers wrote:

Kit wrote:
yeahh i'm ? kinda with u ?
like i'm v hesitant to say anything mental health related should be 'harder' bc a lot of people face huge obstacles to diagnosis and treatment but

ya i've in therapy since i was 15 and have been diagnosed with PMDD, GAD, depression, social anxiety, bpd and avoidant pd by a bunch of different therapists mostly in my teens --- i know that some are probably accurate but most of these are just best guesses lmao. my sister was also misdiagnosed w bipolar disorder in her teens too, & she had some pretty intense side effects from medication from that too

so yea, i think especially with stuff like personality disorders u ... cannot be diagnosing teenagers

i think a diagnosis should b harder like they should look very deep into the person and the issue but i definitely think treatment should be easier to get ESPECIALLY different types of therapy and you shouldn't be required to have a diagnosis as i think i was told u had to when it came to DBT? like i've never gotten any type of therapy only meds which i think isn't okay

yeah for sure, it's really unfortunate that diagnosis is really like an obstacle to getting treatment ... i also find that when u get the "right" treatment for ur diagnosis it's often not comprehensive enough bc they're treating the DSM diagnosis, not u as a person

but honestly it's not at all okay that you're just getting meds without any kind of therapy ; not only is that just like, not going to help u in the same way that therapy can ? but also taking psych medications without a therapist to check in with and monitor u is rly irresponsible. are u from the US ? just asking bc that sound like a bit of a shitshow and thus american lol

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wrote:
on topic of diagnosis i believe self diagnosing shouldnt be so controversial mayb

Kit
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Kit wrote:

Bloodflowers wrote:

Kit wrote:

Bloodflowers wrote:
i also find it extremely weird the patient has so little say on what diagnosis is in their papers? if i've never recieved treatment and never will then just.... why...

but also that's really weird honestly ? is there not a way to have that removed ? i know where i'm currently being treated ur therapist has to confirm with u any diagnosis they make and also has to get consent to make that information available to like ur general practitioner or insurers etc.

like w patient privacy is there not a way to have that diagnosis like idk . redacted or whatever ?

The only way to get it removed is to do a second opinion as in do a new entire diagnosis thing with a psychiatrist but that's hard to get. I've brought up this shit for years but they just kind of shrug and ignore it. It needs to be from someone who didn't put the diagnosis on me and getting an appointment in general is like u have to wait months

ohh god yea that sucks, wait times r the worst ? & dismissive psych professionals ? grrr
but if u are really doubting that bpd is an accurate diagnosis and u feel strongly that u want it off your records i think it's definitely worth pushing for ; even if ur current psychiatrist is confident in their diagnosis they should be open to a 2nd opinion & if not that's ... a pretty big red flag tbh

Private
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ouch wrote:

Heaven wrote:
on topic of diagnosis i believe self diagnosing shouldnt be so controversial mayb

Shouldn't b controversial but it should if u go around telling it like a truth, u should b more like "I think I might have this" or smth like that, not "I have this"

Bloodflowers
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Bloodflowers wrote:

Kit wrote:

Bloodflowers wrote:

Kit wrote:
yeahh i'm ? kinda with u ?
like i'm v hesitant to say anything mental health related should be 'harder' bc a lot of people face huge obstacles to diagnosis and treatment but

ya i've in therapy since i was 15 and have been diagnosed with PMDD, GAD, depression, social anxiety, bpd and avoidant pd by a bunch of different therapists mostly in my teens --- i know that some are probably accurate but most of these are just best guesses lmao. my sister was also misdiagnosed w bipolar disorder in her teens too, & she had some pretty intense side effects from medication from that too

so yea, i think especially with stuff like personality disorders u ... cannot be diagnosing teenagers

i think a diagnosis should b harder like they should look very deep into the person and the issue but i definitely think treatment should be easier to get ESPECIALLY different types of therapy and you shouldn't be required to have a diagnosis as i think i was told u had to when it came to DBT? like i've never gotten any type of therapy only meds which i think isn't okay

yeah for sure, it's really unfortunate that diagnosis is really like an obstacle to getting treatment ... i also find that when u get the "right" treatment for ur diagnosis it's often not comprehensive enough bc they're treating the DSM diagnosis, not u as a person

but honestly it's not at all okay that you're just getting meds without any kind of therapy ; not only is that just like, not going to help u in the same way that therapy can ? but also taking psych medications without a therapist to check in with and monitor u is rly irresponsible. are u from the US ? just asking bc that sound like a bit of a shitshow and thus american lol

im going to say something bold that i dont think only medication rlly works and that with a lot of diagnoses there are a lot of thoughts and behaviours too that needs changing like what are you going to do if you fall back into how you felt before ? who knows bc in my experience its take these pills and ur cured

a doctor is supposed to check in with me. im saying supposed to bc theyre really bad at that. and when i say check in i mean take my blood test look at it not talk about how im feeling. im european

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wrote:

ouch wrote:

Heaven wrote:
on topic of diagnosis i believe self diagnosing shouldnt be so controversial mayb

Shouldn't b controversial but it should if u go around telling it like a truth, u should b more like "I think I might have this" or smth like that, not "I have this"

yes yes i agree

Bloodflowers
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Bloodflowers wrote:

Heaven wrote:
on topic of diagnosis i believe self diagnosing shouldnt be so controversial mayb

i believe the opposite bc i find people get really stuck on the specific thing they think and you cant really treat a diagnosis you gave yourself.
but also people see being self aware as self diagnosis and that pisses me off to no end. there is no point of a self diagnosis but its good to be aware of what you experience

Bloodflowers
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Bloodflowers wrote:

Kit wrote:

Bloodflowers wrote:

Kit wrote:
but also that's really weird honestly ? is there not a way to have that removed ? i know where i'm currently being treated ur therapist has to confirm with u any diagnosis they make and also has to get consent to make that information available to like ur general practitioner or insurers etc.

like w patient privacy is there not a way to have that diagnosis like idk . redacted or whatever ?

The only way to get it removed is to do a second opinion as in do a new entire diagnosis thing with a psychiatrist but that's hard to get. I've brought up this shit for years but they just kind of shrug and ignore it. It needs to be from someone who didn't put the diagnosis on me and getting an appointment in general is like u have to wait months

ohh god yea that sucks, wait times r the worst ? & dismissive psych professionals ? grrr
but if u are really doubting that bpd is an accurate diagnosis and u feel strongly that u want it off your records i think it's definitely worth pushing for ; even if ur current psychiatrist is confident in their diagnosis they should be open to a 2nd opinion & if not that's ... a pretty big red flag tbh

it's not only me and that's the funny part. it's been brought up before that maybe it should be removed but then they just went meh. and when i ask what happened to me getting dbt and theyre like "but you don't have those issues" ok ??