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chronically ill people
Private
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Limbs wrote:
how do you cope with not being able to function sometimes and still manage your daily life? 

for example, how do you deal with it if your body stops working/you get so exhausted you struggle to function while out in public? like the other day i wasn't sure i could make it home and i'm just not sure what to do in situations like that

another thing i'm struggling with rn is studying, i'm only taking one course atm so i feel like i could manage it otherwise, but group assignments make things so difficult. cuz i just become exhausted & unable to function very randomly, and with group assignments if i'm not able to function that sabotages other people's work as well? like, my health is just not reliable enough to be responsible for other people's work as well... idk how you should deal with that hhhgh

disclaimer: i'm not technically chronically ill since i don't have a diagnosis but i have health problems that are chronic so idk. anyway i would like advice and i feel like chronically ill ppl would have advice for this?
16
Posts: 9825
Date: 01-10-2020 10:11
Private
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Marcelien wrote:
cant help you there. only suffer from depression and anxiety i prob wont get rid of, but it doesnt stop me from anything major like it seems ur problems do.

have u talked to ur doctor about it? they could probably help you with either some medication or tips on how to live with ur problems.
does ur group know about ur problems? being open about it might be helpful. they can adjust after it.
19
Posts: 10487
Date: 01-10-2020 10:20
Private
International star



uhyre wrote:
just straight up pushing through 90% of the time

after so many years i know what is what when it comes to my body, and a lot of it just boils down to pain with no immediate danger. so i push through bc i know the pain will pass

the other times i just accommodate as necessary. i have my cane, i have my chair in the kitchen, i have bed stuff readily available by the couch, i permanently have a bucket by every spot i tend to settle down, and i just do what i can, theres nothing else to do

its not perfect. i have on multiple occasions passed out in public and had ambulance called. i passed out walking back from the bus station right by the main road and some lady picked me up and drove me home thank god she wasnt a serial killer. ive fallen sleep on benches in town bc i sit down to take a rest and ive been in so much pain walking home ive thrown up in the street. it happens. my bed and ice pack is at home at the end of the day no matter what

as for group work the best thing u could do is communicate with ut group and tell them ur ability to do work i shifty, so u allcan figure out how to work around it. maybe that means means u having simpler tasks, or less tasks, or even less important ones in cae of not being able to do anything at all. talk to ur teacher about it too so they know ur not just bailing on work for the hell of it
17
Posts: 28887
Date: 01-10-2020 10:30
Persona
Streetmusician



Persona wrote:
I definitely feel you on all those things (one of the reasons I get worried about leaving the house/get really anxious travelling far is because i'm afraid my body with just shut down so to speak and I won't be able to make it home). Can only sympathise  (also keeping an eye on the thread for ideas lol)
16
Posts: 24233
Date: 01-10-2020 10:33
Private
World famous



newborn wrote:
yeah it’s really hard not being able to keep up with what feels like is expected of you. 

countless of times i’ve been stuck in public unable to walk from pain. it obviously sucks, but at that moment it’s about going into a survival mode and figure out the steps for you to get home. i’ve learned that i need to be paitient n chill the fuck down, ‘the situation is what it is, i know that i’m gonna get home, it just won’t happen as quickly as i want’ and take my time. some times it’s necessary to accept help from strangers, other times it’s just taking a small step at the time and do a lot of breaks. sometimes i like to hide a little in those situations with sunglasses or taking a less crowded route.

studying is rough, it’s hard for me to keep up, we work mainly in groups as well. when you know you got those issues, you gotta plan around it. it’s very unnatural for me, but i gotta start early on an assignment bc i know there’s a high possibility of me getting/being sick or exhausted and then it will be even harder to do. basically there’s a lot of planning around your illness and always try to be a step ahead.

It fucking sucks, but realising that you won’t be able to do what you want in every area of your life is necessary, you gotta prioritize when you’re limited by your body. rn i’m finishing up school, which i barely have the energy for on it’s own. that means that I have had to cut of pretty much else for the time being, when that feels hopeless and unfair, i try to remember why i’m studying and that I have made the choice of doing so - like i wanna finish this education so i can get a certain job etc
19
Posts: 3361
Date: 01-10-2020 10:56
LOLITA
World famous



LOLITA wrote:
i have hypersomnia (which refers to either excessive daytime sleepiness or excessive time spent sleeping, is a condition in which a person has trouble staying awake during the day. people who have hypersomnia can fall asleep at any time -- for instance, at work or while they are driving. they may also have other sleep-related problems, including a lack of energy and trouble thinking clearly) where i can literally fall asleep anywhere at any time and the only thing i can do is tell everyone around me about it and if i need to lay down somewhere i tell them that too so they can look out for me. ive also had countless of times where ive fallen asleep in public without my friends and been in so much pain and honestly you just need to push through, i know its easier said than done, but there's not really anything else to do )-; 

studying and school work for me is absolutely horrible, because of my trouble concentrating and lack of energy. i always get low grades because of this and because of memory loss, i cant really take any tests to make my grades better. 

as newborn said, you really have to plan alot ahead of time and prioritize things. i also have to cut out ALOT of my free time because of my last year at school. 
19
Posts: 6989
Date: 01-10-2020 11:07
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