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Helper
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how would u go about getting checked
Private
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for epilepsy
idk if it's just my dissociation but i'm concerned that it might be epilepsy instead, can you get tested for that somehow

idk if any doctor would consider it since it's not you know tonic clonic seizures and since i already have another possible explanation
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i'm thinking abt it because my sister and one of her kids have epilepsy. she's the one who suggested it to me actually, when i told her abt my dissociation diagnosis for the first time she was like are you sure it's not epilepsy because that sounds like epilepsy
Pavlov
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oh i got checked for epilepsy when i was going through my narcolepsy assessment i fell asleep it was funny
Pavlov
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i dont know what country youre from but in norway doctors are required to refer you to a specialist if its brain related
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I would totally take it up with them that u have something u feels like seizures and see what they suggest! I mean there is so many types of epilepsy and there is a kind where u allegedly only have a seizure like state, but no other symptoms of the epilepsy
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Pavlov wrote:
oh i got checked for epilepsy when i was going through my narcolepsy assessment i fell asleep it was funny
U had one where u had to stay awake the whole night for the test? 
Pavlov
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Angelica wrote:
Pavlov wrote:
oh i got checked for epilepsy when i was going through my narcolepsy assessment i fell asleep it was funny
U had one where u had to stay awake the whole night for the test? 
no it was just where they put electrodes on your head and check how ur brain reacts to different stimulations since it was only to exclude the possibility of it being epilepsy and not because i was ever suspected to have it
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Pavlov wrote:
Angelica wrote:
Pavlov wrote:
oh i got checked for epilepsy when i was going through my narcolepsy assessment i fell asleep it was funny
U had one where u had to stay awake the whole night for the test? 
no it was just where they put electrodes on your head and check how ur brain reacts to different stimulations since it was only to be exclude the possibility of it being epilepsy and not because i was ever suspected to have it
Oh, yea of cause.
I feel like i remember them testing me where i had to stay awake, so they could test me while sleeping. Thought it was maybe the same one.
Pavlov
International star



Angelica wrote:
Pavlov wrote:
Angelica wrote:
U had one where u had to stay awake the whole night for the test? 
no it was just where they put electrodes on your head and check how ur brain reacts to different stimulations since it was only to be exclude the possibility of it being epilepsy and not because i was ever suspected to have it
Oh, yea of cause.
I feel like i remember them testing me where i had to stay awake, so they could test me while sleeping. Thought it was maybe the same one.
yea they probably use way more accurate and demanding tests if they actually suspect u might have it
Private
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Pavlov wrote:
Angelica wrote:
Pavlov wrote:
no it was just where they put electrodes on your head and check how ur brain reacts to different stimulations since it was only to be exclude the possibility of it being epilepsy and not because i was ever suspected to have it
Oh, yea of cause.
I feel like i remember them testing me where i had to stay awake, so they could test me while sleeping. Thought it was maybe the same one.
yea they probably use way more accurate and demanding tests if they actually suspect u might have it
Oh yea, they for sure tested it for epilepsy, since i had a night seizure.
Pavlov
International star



Angelica wrote:
Pavlov wrote:
Angelica wrote:
Oh, yea of cause.
I feel like i remember them testing me where i had to stay awake, so they could test me while sleeping. Thought it was maybe the same one.
yea they probably use way more accurate and demanding tests if they actually suspect u might have it
Oh yea, they for sure tested it for epilepsy, since i had a night seizure.
damn i didnt even know that was a thing it sounds scary
Private
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If i were you I would go to a regular doctor and see if I would be referred to a neurologist. It's not easy to get diagnosed though. It took me five years to get my diagnosis although I had regular seizures including tonic clonic ones. 
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Pavlov wrote:
Angelica wrote:
Pavlov wrote:
yea they probably use way more accurate and demanding tests if they actually suspect u might have it
Oh yea, they for sure tested it for epilepsy, since i had a night seizure.
damn i didnt even know that was a thing it sounds scary
I don't know how common it is in other types of epilepsy, but i had a child epilepsy that caused my seizures to come while i was sleeping. I have only had a single seizure while being awake and honestly it was very calm? (the symptoms included loss of sight, hearing and my muscles kind of just went limb) 
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im sorry i literally have nothing useful to say but i do want to say that 'tonic clonic' is such a great and satisfying phrase 
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Pavlov wrote:
i dont know what country youre from but in norway doctors are required to refer you to a specialist if its brain related
aa i actually have a neurologist but for nerve pain, idk why i didn't think of this earlier lol
maybe i could bring it up to her if i have another in person appointment
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