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autoimmune diseases
Private
Living Legend



glowed wrote:
are there any fellow virtualpopstars who struggle with chronic pain or an autoimmune disease? how do you cope?
21
Posts: 32664
Date: 08-05-2026 12:35
Private
Living Legend



glowed wrote:
nobody ??
21
Posts: 32664
Date: 08-05-2026 17:55
Private
Princess of Pop



Arthema wrote:
I honestly ask myself that all the time, whatever painkillers I'm given at the time before they stop working and then I get new ones 
This thread is also a great reminder that I need more meds, mmmm
17
Posts: 39381
Date: 08-05-2026 18:14
Private
Popstar



bexxi wrote:
sry im healthy in that aspect 
15
Posts: 3183
Date: 08-05-2026 19:38
Private
Living Legend



glowed wrote:
Arthema wrote:
I honestly ask myself that all the time, whatever painkillers I'm given at the time before they stop working and then I get new ones 
This thread is also a great reminder that I need more meds, mmmm
sending hugs n yes do get your pain meds asap!!
21
Posts: 32664
Date: 09-05-2026 00:27
Private
Living Legend



glowed wrote:
bexxi wrote:
sry im healthy in that aspect 
you’re very lucky!
21
Posts: 32664
Date: 09-05-2026 00:27
Aske
World Famous



Aske wrote:
i dont know, i wasnt able to see a doctor when i was sick and apparently i can't get it confirmed without making myself sick on purpose for a prolonged amount of time so i guess ill just never know
20
Posts: 13958
Date: 09-05-2026 09:51
Solar
National Star



Solar wrote:
i have chronic pain, chronic headaches+migraines and also extra bones in my feet which makes standing + slow walking for a long time hard for me

IT SUCKS and i feel sorry for myself a lot tbh im not the best coper.... 
19
Posts: 10916
Date: 09-05-2026 10:18
Private
Living Legend



glowed wrote:
Aske wrote:
i dont know, i wasnt able to see a doctor when i was sick and apparently i can't get it confirmed without making myself sick on purpose for a prolonged amount of time so i guess ill just never know
oh wow ???
my autoimmune disease is characterized by flare ups and I was hospitalized a while ago with the purpose of determining what’s up, but I didn’t have a flare up during that time so all my tests came back fine 😭 that, however, helped them determine that it’s recurring flare ups and not something like rheumatoid arthritis that is always present and that deteriorates your body over time. but I was so so scared they’d send me home without a diagnosis because on paper everything seemed fine yet I was in pain all the time. 

I hope you’re not in too much pain and that they manage to figure out what’s up ): in the meantime you can try and figure out what causes your flare ups/sickness and do your best to avoid high stress situations, though that’s hard in this present day
21
Posts: 32664
Date: 09-05-2026 11:46
Private
Living Legend



glowed wrote:
Solar wrote:
i have chronic pain, chronic headaches+migraines and also extra bones in my feet which makes standing + slow walking for a long time hard for me

IT SUCKS and i feel sorry for myself a lot tbh im not the best coper.... 
ouchie that does sound very tough ): am sending hugs your way!

I’m not the best coper either which is why I made this post in the first place 😭 so many people live with these issues and go about their lives like normal and that fascinates me
21
Posts: 32664
Date: 09-05-2026 11:48
Private
Popstar



bexxi wrote:
if i had chronic pain id be in such a bad mood everyday
the instances in my life where i had constant pain i was just really annoyed at life constantly 


so its really admirable to me when ppl with chronic pain dont let it affect their mood too much id be such a bitch
15
Posts: 3183
Date: 09-05-2026 14:51
Private
Living Legend



glowed wrote:
bexxi wrote:
if i had chronic pain id be in such a bad mood everyday
the instances in my life where i had constant pain i was just really annoyed at life constantly 


so its really admirable to me when ppl with chronic pain dont let it affect their mood too much id be such a bitch
it’s genuinely so hard 🥲🥲 I wake up in pain every day and have to lie in bed for 30 mins to an hour until I feel capable of getting up,, so if I have to wake up early, I need to wake up Even Earlier before I can be a functioning human being 

it’s tough as balls but what can you do other than live on yk !! 
21
Posts: 32664
Date: 09-05-2026 16:47
Private
Youtube Star



devilcake wrote:
Naur… I always say I’m lucky I’m very physically healthy but I’m starting to think it might be a bit of denial lmao… My mama is being tested for rheumatoid arthritis rn, n we apparently have it in the family so I’m paranoid my muscle and joint aches is smth other than vitamin deficiencies 💀but ig I’l brin it up n find out in June or whenever I manage to get a doctors apt about my fainting spells, but I’m prolly destined for developing rheumatoid arthritis or other rheumatoid issues rventually ripperoni 

I hope you can find some good way to cope…. Mymoms Doin a bit better finally bc she started taking her prescribed anti inflammatory meds finally but ik that’s not always a good solution for autoimmune stuff
19
Posts: 199488
Date: 09-05-2026 17:10
Private
Popstar



bexxi wrote:
glowed wrote:
bexxi wrote:
if i had chronic pain id be in such a bad mood everyday
the instances in my life where i had constant pain i was just really annoyed at life constantly 


so its really admirable to me when ppl with chronic pain dont let it affect their mood too much id be such a bitch
it’s genuinely so hard 🥲🥲 I wake up in pain every day and have to lie in bed for 30 mins to an hour until I feel capable of getting up,, so if I have to wake up early, I need to wake up Even Earlier before I can be a functioning human being 

it’s tough as balls but what can you do other than live on yk !! 
i really feel for u (and everyone else in this sitution) i hope u manage to cope with it as best as u can even tho the baseline will always suck
15
Posts: 3183
Date: 09-05-2026 20:17
Aske
World Famous



Aske wrote:
glowed wrote:
Aske wrote:
i dont know, i wasnt able to see a doctor when i was sick and apparently i can't get it confirmed without making myself sick on purpose for a prolonged amount of time so i guess ill just never know
oh wow ???
my autoimmune disease is characterized by flare ups and I was hospitalized a while ago with the purpose of determining what’s up, but I didn’t have a flare up during that time so all my tests came back fine 😭 that, however, helped them determine that it’s recurring flare ups and not something like rheumatoid arthritis that is always present and that deteriorates your body over time. but I was so so scared they’d send me home without a diagnosis because on paper everything seemed fine yet I was in pain all the time. 

I hope you’re not in too much pain and that they manage to figure out what’s up ): in the meantime you can try and figure out what causes your flare ups/sickness and do your best to avoid high stress situations, though that’s hard in this present day
oh man that sounds so tough, im glad you got an answer, but id imagine its a very heavy answer to get. i wish i had anything useful to say, other than that i hope you find ways to manage it as best you can. and its ok to not be ok, sometimes life really just sucks 

whether its autoimmune (celiac) or not honestly doesnt make a big difference to me, it would have been good to know, but it doesnt change how i have to go about it, im very much gluten intolerant either way. it has complicated my life in ways i wouldnt have foreseen, but i feel truly fortunate that its something that can be kept in check as long as i dont trigger it.
i get microdosed all the time tho, because our kitchen is a contaminated hellscape, and every surface area is covered with flour at all times. but i can handle it, its not too much. and i remember how bad it can get, i genuinely thought i was a dead (wo)man, so the fraction of it that im dealing with now doesnt feel as severe 

at least i hope that the microdosing is whats causing my current issues lol, it would be so uncool if its something else, and im just ignoring it because i thnk i have it all figured out and the doctor told me to have some fish oil and get a job
20
Posts: 13958
Date: 09-05-2026 22:23
Private
Living Legend



glowed wrote:
devilcake wrote:
Naur… I always say I’m lucky I’m very physically healthy but I’m starting to think it might be a bit of denial lmao… My mama is being tested for rheumatoid arthritis rn, n we apparently have it in the family so I’m paranoid my muscle and joint aches is smth other than vitamin deficiencies 💀but ig I’l brin it up n find out in June or whenever I manage to get a doctors apt about my fainting spells, but I’m prolly destined for developing rheumatoid arthritis or other rheumatoid issues rventually ripperoni 

I hope you can find some good way to cope…. Mymoms Doin a bit better finally bc she started taking her prescribed anti inflammatory meds finally but ik that’s not always a good solution for autoimmune stuff
wishing you and your mom lots of luck, RA sucks so bad ):

I am taking anti inflammatory meds as well and I haven’t had any bad flare ups since I started taking them, but the morning stiffness and joint pain hasn’t gone away sadly 😭 and stress always makes it worse, I really need to learn how to deal with stress better 

oddly enough, gym is helping me a lot both mentally and physically ?? my pt keeps making me push past my limits and it’s good to know that I can actually do more than I think I can
21
Posts: 32664
Date: 11-05-2026 11:10
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